Mentors Network

The Foundation receives a number of requests from families with children that have been diagnosed with Craniosynostosis, who just need to talk about their experience, or are looking for advice and emotional support. To serve this need, we have developed a Mentors Network, where we recruit volunteers that have experienced Craniosynostosis in their family. These volunteers are then partnered up with those families looking for help.  Mentors are matched with families based on location and type of Craniosynostosis. If possible, we try to match people up based on the doctors and hospitals they used.

Becoming a Mentor

Our mentors are currently located in 24 different states througout the country.  These families generously donate their time to be supportive to those who are just starting this process.  Have you experienced Craniosynostosis? Are you caring, compassionate, understanding, empathetic, patient, honest, trustworthy, kind, and knowledgeable about Craniosynostosis?

If you are interested in becoming a volunteer for this program please send an email to mentors@jorgeposada.com with the following information:

Name * Email Address * Address * Home Phone * Cell Phone * Birth year of diagnosed *

If it’s your child, his/her name * Type of diagnosis * Hospital used * Doctors used *

Type of surgery performed (endoscopic/traditional) * Type of procedure your child had *

Any experience mentoring? *  Additional info (complications, disabilities, etc.) *

Age at surgery
 

You will be contacted by the Foundation staff after the information is received.

**Please keep in mind mentors are NOT to provide any medical advice or question the decisions their mentoree's doctors have made.

Seeking a Mentor

Families that have a child diagnosed with Craniosynostosis are not alone.  Although it may be a devastating diagnosis, it is fortunately a very treatable birth defect.  If you are interested in seeking a mentor, please send an email to mentors@jorgeposada.com:

Name  *  Phone Number * Email Address * Name and Birth Year of Your Child

Type of Craniosynostosis * Hospital and Doctors Dealt With * Type of procedure

you are considering * Age at surgery

Are you a current or former Mentoree?

Please tell us about your experience by clicking on the link below:

Jorge Posada Foundation Mentoree Survey